The Well Project undertakes surveys every few years to better understand the community we serve and how they utilize our resources to ensure that we are maximizing our effectiveness and strengthening the impact of our programming. We also conduct the survey to gain insights into the experiences of women living with HIV (inclusive of cisgender and transgender women) so that we can identify areas of need for education, support, advocacy, research and/or policy changes. Our survey data highlight some of the opportunities and challenges for women along and beyond the HIV care continuum. In particular, they make clear the need to expand notions of optimal outcomes beyond viral suppression (i.e., have an undetectable viral load) to include measures of broader health and quality of life as articulated by women themselves based on their lived experiences.
Groundbreaking infant-feeding updates in the US Perinatal HIV Clinical Guidelines have led healthcare providers to report significantly increased support for birthing parents living with HIV who are interested in breast/chestfeeding, The Well Project reports.