Thanks a lot for support. I...

Thanks a lot for support. I have few questions I hope you will answer....May I know what is the average cost of medicine and treatment in India for hiv.
Second what about age expectancy?
Third and last is do people from scientist doctors engineers(I know u r in IT) etc are also suffering from this. Or I'm the only unlucky person

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India : HIV Support Group

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9 comments

Submitted by motixxoo
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Im not sure of the cost of meds in I do but I will ask my friends. I live I. The Zui

i am not sure if drug costs I. India:  I am in US. I will ask my friends. As far as life expectancy. You need have no worries as long as you get into treatment as soon as possible. I was diagnosed in 1982. And have now livdd to see my first great grandchild. The important thing is get I to treatment. You are not the only educated person to have this happen. I am a professional nurse with a bachelors degree from the university of Massachusetts at Boston. I know many other professionals who are likewise infected. The virus does not discriminate and accidents happen. I was I fected through a needle accident at   You are not alone. You and your wife can have a normal life with the use of condoms during relations. My husband is hiv negative and we have a normal life. Educate your wife about the disease. Feel free to ask me any questions you have in future. I am here for you. God bleS you always. Motixxoo 

Submitted by Arpit55
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I will try for sure..Will be in contact. thanks again @Motixxoo for responding. and congrts for your grandchild. I wish him great and healthy life ahead. But wanna ask you one more thing do you follow some special diet regimn. and is it difficult to live as hiv positive. I am getting many feeds from google that PLHIV always under the attack of some sought of infections that make you sick.
Second, I am happy for your health but do any of other of your friends also been that fit and healthy? sorry if i sound very passimist but im very much frightened. (sorry for my english typing errors my hands are trembling).
<<<<<<PS: THANKS A LOT I ADORE YOUR HELP AND THIS GROUP>>>>>>

 

Submitted by motixxoo
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I'm having a bit of trouble with format so if you already got this I apologize. I have many friends living with the virus who are healthy and happy. Many are working as well I dont eat a special diet but I try to get adequate protein and eat a variety of fruits and vegetables. I include turmeric in my cooking which I'm sure you get plenty of in curry. I hope you might try our Facebook support group. Advocacy for HIV:AIDS. hEMA Ucls. You need not use your real name. We have many Indian members they may be able to direct you to an appropriate clinic in your area where you can get treatment. People who get antiretrovirals are much less likely to get serious Infections. The important thing is to get In to treatment as soon as possible to protect your immune system. If you would like to speak to me directly my facebook name is alicia m okwoma and my what's app. Name is alicia m salgado. I was a member of the state board at the Massachusetts department of public health and I have been 100% open about my hiv status for many years. I have also done work as a peer counselor with hiv Positive clients in my area. Feel free to talk to me anytime. As always I am here for you. Don't give up. God is with us all

Submitted by Arpit55
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Dear alicia,
Good to know you. But will you please write the name of through FB group clearly ... I didn't find that on FB.
Second what I wanted to know is that, I don't find many intellectual and educated people here, who got hiv. Or is it a poverty pro disease. May be they are discreet and meet only in closed groups. I'm asking cos I cudnt ignore the fact that it happen to me. Pls I really want to know....

Submitted by Arpit55
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Can you repeat the group name..I didn't find that on FB.
If there are many health cares and people from intellectual people even in India. Why I couldn't find out on net. Is that they want to be discreet. Or actually in India this disease actually in poverty region of society.
I am asking cos I'm in cursing that day which made me feel this.

Submitted by Arpit55
0

Dear alicia,
Good to know you. But will you please write the name of through FB group clearly ... I didn't find that on FB.
Second what I wanted to know is that, I don't find many intellectual and educated people here, who got hiv. Or is it a poverty pro disease. May be they are discreet and meet only in closed groups. I'm asking cos I cudnt ignore the fact that it happen to me. Pls I really want to know....

Submitted by JoDha
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Hi Arpit,

Apologies for late reply. It had been a long "holiday" weekend (Rakshabandhan, Janmasthami, Republic Day) and I have been off-work. So back to your question :

1) May I know what is the average cost of medicine and treatment in India for hiv: This depend on where you want to get treatment from. Government hospital provide it for free, Private Doctors has their own fees which vary from doctor to doctor depending on their degrees/location/reach, and well known Private Hospital has a fixed cost but kind-of expensive. There are also Community Care Centres that may give discounts. Hence choice is yours. You can reach out to me in case you are Bangalore based or planning to be in Bangalore and I will help you in connecting to the best doctor here for your lab tests and treatments at the discounted rates (though medicine cost won't be in a discount. Also, the cost vary from the combination you take. No all medicine price are the same)

Second what about age expectancy?: HIV is a manageable and treatable illness. Though there is no cure, there are medicines to keep the virus under control. All you need is to follow STRICT ADHERANCEto the same, do yearly VL testing (below 40 copies are excellent and you need to maintain that. This is known as UNDETECTABLE level). Exercise. Refrain from spicy, sweet, oily and junk food - I am not saying to completely avoid - but have it in a limit. It is applicable to everyone, not just for PLWHA. Eat in moderation is the best. And eat healthy. Drink less. Stop smoking.

Third and last is do people from scientist doctors engineers(I know u r in IT) etc are also suffering from this. Or I'm the only unlucky person : NO. Never term yourself as "unlucky". There is nothing unlucky when one is disabled, suffer from some kind of terminal illness, or even poor. This is all about "understanding" and "accepting" life. Love yourself for who you are. There are doctors who are HIV positiove (yes I know a lot), there are also many professionals who are HIV positive too and there is also me who has been living with HIV since 2005. And we all have one thing in common : we dont let our illness rule or control us. We live our life as if there is no tomorrow - taking each day as it come- full of gratitude. Hence be grateful for small things and be full of positivity - and you will see the world a happier better place.

Much love and light

Jyoti Dhawale Surve (you will find me by that name in FB)

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