Dealing with Chronic Fatigue

Post created 5 years 3 months ago by JoDha

What NOT to say: "Why are you in bed most of the time?" Or "Why are you sick most of the time?" "Push Yourself." "It happens and it is normal." "You are so lazy." (The last two are "common" statements amongst women.)

These are the questions that have always been fired at me - which have often been the cause of relationship disaster. But wait, "most" of the time?? I, for one, hate sedentary lifestyle. I, for one, would love to go out, love to help around the house or outside, love to travel. One thing many forget that being a #PersonLivingWithHIV, I also suffer from #ChronicFatigueSyndrome. This goes hand-in-hand as one ages. It is also because of being a #LongTermSurvivor (14 years and still going strong). Hence people like us have learnt to put #SelfLove as a PRIORITY - to love, to understand, to care and respect our body first.

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1 comment

Will I lose my job due to HIV or Side effects of drugs?

Submitted by amandel • 4 years ago

Hi Jyoti.. thanks for being suchha strong inspiration for PLHIV. I had a potential exposure 2 months back... I haven't tested yet but have symptoms... will go for test as soon as I am able to confront my situation... My questions are

Will I be able to continue my job as usual if I have HIV (or will the chronic fatigue or other problems make me unable to work)?
Will HIV drugs and their side effects render me unable to do my job?
Is it possible to take hiv meds and not have your HIV status revealed to family? Or will they come to know automatically from the health issues one faces?
I am 42 years old and have average health. (Except that I am losing body mass since I was exposed). How are people of my age placed to fight HIV?
I am unmarried living with parents and married brother... If I leave my family will I be able to fight HIV staying alone. Or some attendant is must to look after HIV patients?
Does hiv cause hospitalisation often?
Are there any good yet less expensive Private hospitals/doctors to treat HIV in Delhi/Gurgaon? Please advise.
Is free treatment in govt hospital as good as that in Pvt ones.

I am the only member in the family who earns and manages all expenses and loans. I have no savings. I do not want to stop working even for a small period. Please advise.

Many Thanks